How Would You Live With A Terminal Lung Disease Like Cystic Fibrosis?

Ever wonder what it would be like to have a terminal lung disease? Created by someone with Cystic Fibrosis, this quiz may provide the insight you've always wanted - would your life with CF be miserable, sad, good, great or amazing?

Colten Lindsey
On Mar 24, 2015

How much do you enjoy sleeping?

Describe the environment for 8-12 hours of your day.

What grades do you satisfy yourself on getting?

What's the absolute worst kind of sick?

You have a day to yourself. Where are you spending it?

What quality MUST your romantic partner have?

What do YOU DO BEST in your romantic partnership?

You have to live out of a suitcase for a couple of weeks. . .

Your friend is venting to you about how sick they are of having the Flu! You respond with. . .

What do you do when you have a headache?

Dinner was just announced at a family party and you notice people starting the buffet line. . . what do you do?

How much sleep do you need to feel refreshed?

Do you enjoy snorkeling?

Your bad day can likely be attributed to. . .

As you reflect on what the day brings each morning, how do you typically feel?

If your doctor gave you an estimated year left to live, what would you do differently than now?

Miserable.

Miserable.

Lucky for you CF is a genetic disease that's not contagious. You would absolutely detest your life with CF. You will struggle to draw every single breath. There will be moments you would do anything to have a single day of “breathing easy.” Let alone all the other stuff - you just want to take a short break from working so hard to fill your lungs.


Feverish body aches and joint pain will be an underlying part of each moment, along with chest pain and a sore, dry throat. You may be able to avoid cramps and stomach pain - as long as you always have 3-6 enzymes on hand before eating anything.

Frequent hospital admissions will adversely affect your attendance at work and school, so make sure you can handle the extra pressure of keeping up with your workload while living out of a suitcase. Try finding a non-labor intensive job that has understanding and compassionate management, as an inconsistent paycheck is better than none at all.

Your treatments will take anywhere from 20-60 minutes each session, so set aside extra time before leaving the house in the morning, as well as prior to going to bed each night. Because your oxygen intake will be sub-optimal by nature, you will need more sleep than most people do. Additionally, this will cause a constant feeling of fatigue, never fully refreshed and ready to take on the day.

Intimacy will be hard to achieve, as it becomes very difficult to hold somebody close when you’re coughing every 15-30 seconds, making maintaining “the mood” in the bedroom extremely challenging.

CF is more than just a physical challenge - it’s a mind game. Adjusting to unexpected news in your life will become the new norm - and very little of it will be considered positive. Try to remember that things could always be worse than they are - you’ll lead a joyful and fulfilling life if you do!

Sad

Sad

It's a good thing Cystic Fibrosis is a genetic disease that's not contagious, because it's looking like you’re not an ideal candidate for a CF life. Struggling to draw every single breath would be the last of your worries.

The prevalent feverish body aches and joint pain may go unnoticed for you, as the constant coughing, chest pain and sore, dry throat will cap out your tolerance levels. You may be able to avoid cramps and stomach pain - as long as you always have 3-6 enzymes on hand before eating anything.

Your constant cough will inhibit your effectiveness in working both physically, and in retail. You’ll have to respond daily to questions like “Do you have a cold”, “Are you not feeling well”, and “Are you contagious.”

Frequent hospital admissions will adversely affect your attendance at work and school, so make sure you can handle the extra pressure of keeping up with your workload while living out of a suitcase. Try finding a non-labor intensive job that has understanding and compassionate management, as an inconsistent paycheck is better than none at all.

Your treatments will take anywhere from 20-60 minutes each session, so set aside extra time before leaving the house in the morning, as well as prior to going to bed each night. Because your oxygen intake will be sub-optimal by nature, you will need more sleep than most people do. Additionally, this will cause a constant feeling of fatigue, never fully refreshed and ready to take on the day.

Your love life takes on a whole new dimension, and you’ll quickly find that most people scare away easily. The statistical likelihood of a short life for you will commonly be at the root of each breakup, so you’ll want to decide how to approach each issue.

CF is more than just a physical challenge - it’s a mind game. Adjusting to unexpected news in your life will become the new norm - and very little of it will be considered positive. Stop waiting for things to improve, and start improving things by your own means. Having your last good day is as much a reality for you, as it would be if you had CF - the difference lies only in your expectations. Every passing day that you’re not doing something you love, is a day wasted on something you don’t love.

Enjoy your life - if you don’t, then change something until you do.

Good

Good

Were Cystic Fibrosis a contagious disease, you’d do alright as a Cyster or Fibro in the CF world! Struggling to draw every single breath would be one of only few worries.

You’d probably adjust well to the feverish body aches and joint pain, with the constant coughing, chest pain and sore, dry throat occupying your distress quota. You may be able to avoid cramps and stomach pain - as long as you always have 3-6 enzymes on hand before eating anything.

Your cough will inhibit your effectiveness in working retail, and you’ll have to respond daily to questions like “Do you have a cold”, “Are you not feeling well”, and “Are you contagious.”

Frequent hospital admissions will adversely affect your attendance at work and school, so make sure you can handle the extra pressure of keeping up with your workload while living out of a suitcase. Try finding a non-labor intensive job that has understanding and compassionate management, as an inconsistent paycheck is better than none at all.

Your treatments will take anywhere from 20-60 minutes each session, so set aside extra time before leaving the house in the morning, as well as prior to going to bed each night. Because your oxygen intake will be sub-optimal by nature, you get to sleep longer than most people. However, the degraded quality of sleep will be the source of constant fatigue, and you will rarely feel refreshed in the morning.

Intimacy will be hard to achieve, as it becomes very difficult to hold somebody close when you’re coughing every 15-30 seconds. Try to find a compassionate partner, or one who has a similar challenge in their own life.

CF is more than just a physical challenge - it’s a mind game. Adjusting to unexpected news in your life will become the new norm - and very little of it will be considered positive. Keep your goals in sight, and never stop working for what you want!

Every day you spend not doing something you love, is a day that’s been wasted on something that you don’t.

Great!

Great!

Were Cystic Fibrosis a contagious disease, you’d be an awesome Cyster or Fibro in the CF world! Very few things would effect your life adversely, as long as you continued maintaining a positive attitude.

You’d hardly notice the underlying body aches and joint pain, constant coughing, chest pain and sore, dry throat. Avoiding cramps and stomach pain wouldn’t be a problem, as long as you always take 3-6 enzymes before eating anything.

Whether you work out of your home or in an office, your effectiveness shouldn’t be impacted much, though you’ll likely always wonder how your co-workers really feel about having to listen to constant background coughing.

Frequent hospital admissions will adversely affect your attendance at work and school, so make sure you can handle the extra pressure of keeping up with your workload while living out of a suitcase. If you can’t work for yourself, try finding a non-labor intensive job that has understanding and compassionate management; because an inconsistent paycheck is better than no paycheck at all.

Your treatments will take anywhere from 20-60 minutes each session, so set aside extra time before leaving the house in the morning, as well as prior to going to bed each night. Even though the constant fatigue from a degraded sleeping experience will keep refreshing mornings few and far in between, you might find that it’s a fair trade for the amount of extra time you’ll spend doing it! Your oxygen intake will be sub-optimal - so the more sleep you can get, the better.

As long as you have a life partner that’s capable of either loving deeply, or does well at handling their emotions, your love life will absolutely thrive! You won’t be the only one living with CF, as there are a substantial amount of emotional effects that your partner will have to live with. Consequently, you’ll experience the taste of a rare relationship, and be all the more grateful for everything they are.

CF is more than just a physical challenge - it’s a mind game. Adjusting to unexpected news in your life will become the new norm - but you’ll handle it like a champion. Take joy in the small things, and overlook the bad ones. Remember that every day you spend not doing something you love, is a day that’s been wasted on something that you don’t.

AMAZING

AMAZING

You’d be an inspiration to everybody you associate with, regardless of their circumstances! It is extremely rare that you would let things get your spirits down, and your optimism and happiness would spread far, and wide!

Were Cystic Fibrosis a contagious disease, you would view the underlying body aches, constant coughing, chest pain, cramps and stomach problems as a part of life - concentrating your attention on everything that you do have.

Remembering your enzymes everywhere you go, doing 20-60 minute treatments twice a day, and taking 30 pills on average each day would likely become second nature for you, rather than a necessary evil.
Whether you work out of your home or in an office, your attitude towards work remains positive.

Though frequent hospital admissions will adversely affect your work and school attendance, you wouldn’t have a problem keeping up with your workload - all while living out of a suitcase. You’ve likely thought often of working for yourself, so there’s no need to find a non-labor intensive job that has understanding and compassionate management.

Your treatments will take anywhere from 20-60 minutes each session, so set aside extra time before leaving the house in the morning, as well as prior to going to bed each night. Even though the constant fatigue from a degraded sleeping experience will keep refreshing mornings few and far in between, you might find that it’s a fair trade for the amount of extra time you’ll spend doing it! Your oxygen intake will be sub-optimal - so the more sleep you can get, the better.

As long as you have a life partner that’s capable of either loving deeply, or does well at handling their emotions, your love life will absolutely thrive! You won’t be the only one living with CF, as there are a substantial amount of emotional effects that your partner will have to live with. Consequently, you’ll experience the taste of a rare relationship, and be all the more grateful for everything they are.